This tool allows you to query the Clinical Data Warehouse to get patient counts and demographic breakdowns.
How to Use i2b2
Access to de-identified patient counts is available to researchers through i2b2. Access to higher level data requires approval through the data request process.
i2b2 (Informatics for Integrating Biology and the Bedside) is an NIH-funded National Center for Biomedical Computing based at Partners HealthCare System. It is a query tool that lets you find out what data is in the HSSC Clinical Data Warehouse. Visit www.i2b2.org for more information. There is an active i2b2 Academic
User's Group comprised of several dozen institutions www.i2b2.org/work/aug.html.
i2b2 was designed for cohort identification: How many patients had diagnosis X or procedure Y. It is meant for exploratory research, and it can help you design research questions, or help you make a case on a grant proposal that you would have access to sufficient data to give you statistical power to answer your research question.
i2b2 is not really suited for tasks like clinical trials, sample tracking, study administration or providing real-time alerts. Also, you can’t get a dataset directly from i2b2. Access to higher level data requires approval through the data request process.
i2b2 has a few plug-ins which are available at go-live. There is a plug-in that shows demographic breakdown for one group of people, a plug-in that allows the user to compare demographic breakdowns for two different groups, and a timeline function that shows event occurrence over time for a cohort.
To receive a dataset, you start with the submission of an electronic data request. Once a data request has been submitted, you will be contacted for a consultation with an HSSC honest broker who will help you prepare your request for review by the Data Request Review Committee (DRRC). After approval of a data request by the DRRC you will be provided an approval letter to submit to your institution’s Institutional Review Board (IRB). After the project is approved by your institution’s IRB and there are no further changes, the HSSC honest broker will work with you in receiving the dataset.
There is no cost.
Yes, there is more information in the CDW than just the part that is loaded into i2b2. You can check out the CDW Data Dictionary here. Note that it has more data elements than the i2b2 data dictionary.
Do you still have a question about i2b2? Please complete the following form and we will respond promptly. Please provide a detailed query to ensure that we have the information needed to assist you.